Patient Group Representatives
Stephen J. Schwartz
The Lymphoma Research Foundation
Stephen Schwartz serves as the Lymphoma Research Foundation (LRF) representative, a survivor of Diffusive large B-cell lymphoma. Stephen’s involvement with LRF was at the onset of his 1998 non-Hodgkin lymphoma diagnosis through the Cure for Lymphoma Foundation (CLF), which later merged with the Lymphoma Research Foundation of America to become the Lymphoma Research Foundation. Stephen serves on LRF’s Regional Leadership Council and was a member of the Public Policy Committee. He is the inaugural recipient (July 2017) of the Marnie Gordon Founder’s Award. Stephen is the Senior Business Development Manager at Advantage DCI, a unit of Advantage Technologies in New York. He joined after spending six years working in energy efficiency at Lime Energy, having served in senior positions including: Program Director, Sales Manager, and Finance Director. Stephen has more than 20 years of international experience as a media sales and marketing, business-to-business professional in the online, print, conference, and trade show mediums. More than half has been in the science (STM) and chemical industries, first at Chemical Week (IHS Markit) then Nature Publishing Group (NPG), a division of Macmillan Publishers Limited, part of Springer Nature. At NPG, Stephen directed all U.S. advertising sales (print, digital and podcast) for Nature, the world’s leading scientific journal, as well as 17 other monthly titles including Nature Biotechnology, Nature Genetics, as well as aiding in the launch of Nature Methods. Stephen lives with his family in New York and is a graduate of the Boston University School of Management, now the Questrom School of Business.
ThyCa: Thyroid Cancer Survivors' Association
Theresa Wickerham began volunteering for ThyCa: Thyroid Cancer Survivors’ Association in 2000. Following her original thyroid cancer diagnosis in 1975 she went 25 years without meeting anyone with thyroid cancer. She had a recurrence in 1998. During this more recent treatment experience she found some information about thyroid cancer on the Internet and also virtually met thyroid cancer survivors. This empowerment helped her realize that no one should go through a thyroid cancer diagnosis and journey alone and without the knowledge necessary to make good choices. She decided to get involved and make a difference. She founded the St. Louis Thyroid Cancer Survivors’ Support Group, organized several one-day regional workshops throughout the Midwest, and has taken on more and more involved planning and coordination roles in ThyCa’s International Thyroid Cancer Survivors’ Conferences including hosting the meeting in St. Louis, Missouri, in 2008 and 2015. In 2012 Theresa took the position of Program Coordinator for ThyCa. In this role she furthers education and support programs for all people dealing with a thyroid cancer diagnosis. She lives outside of St. Louis, Missouri, with her husband and enjoys spending time with their children and grandchildren.
Josh A. Mailman
NorCal CarciNET Community
Josh A. Mailman holds a BA in Economics from the University of California at Los Angeles and an MBA in Marketing and Finance from the Anderson School of Management at UCLA. He is a Silicon Valley executive with over 20 years of success in the technology field. Mr. Mailman co–created eFax.com where he served as Vice President of Operations in addition to applying for and receiving several patents for his work on eFax’s technology. During his career Mr. Mailman has held executive level potions at Xerox, NBCi and Everyone.net. Mr. Mailman’s last start-up, ChatterEmail was sold to Palm in 2007. Since his diagnosis in 2006 Mr. Mailman has focused his time and energy in the Non-profit community. He currently serves on the executive board of the Neuroendocrine Tumor Research Foundation (NETRF.org), as president of the Northern California Carcinoid / Neuroendocrine Support Group (www.NorCalCarciNET.org), as Chief Operating Officer of WARMTH, and as a member of the NCI Steering Committee on GI Cancer.
ZERO - The End of Prostate Cancer
Drew Saelens is the Vice President of Government Affairs and Patient Advocacy at ZERO - The End of Prostate Cancer. In this role, he leads ZERO's fight for increased prostate cancer research funding, access to early detection and screening, and other public policies that help men and families battle prostate cancer. Drew's background is in health policy and reimbursement consulting. He also secured funding to reduce patients' financial toxicity associated with high out of pocket requirements while leading the development team at the largest copayment assistance foundation in the country. He holds Bachelor of Science in Business Administration from The University of Richmond and Masters of Business Administration (MBA) and Government from The John Hopkins University.
FORCE: Facing Our Risk of Cancer Empowered
Rosemary Ciotti is the consumer representative for FORCE, "Facing Our Risk of Cancer Empowered," a not-for-profit organization involved in research education and consumer support surrounding genetic risks for Breast and Ovarian cancers such as BRCA 1/2. Rosemary Ciotti is a nurse practitioner and President of Accessible Living, Incorporated of Arlington, Virginia. The company provides expert guidance in Americans with Disabilities Act (ADA) compliance, as well as, working with communities to increase the utility of the built environment through the concepts of Universal Design. Additionally, Accessible Living, Inc. coordinates health care for persons living in the community with spinal cord injuries. Rosemary is a frequent invited participant to conferences both locally and internationally. Rosemary is also Executive Director of “Global Organization of Feminists with Disabilities” (GOFWD) (501 c 3).
Men's Health Network
Ramon works in External Relations and Strategic Partnerships, and Minority Health Initiatives for Men's Health Network. In addition to developing partnerships and health initiatives, Ramon represents MHN's activities in the states and on various city and state government health panels and committees. His previous positions were as Director of Programs for MHN and health promotion at the U.S. Department of Health and Human Services in Washington, D.C. Ramon Paolo Llamas graduated with a B.S. in Biological Sciences with a minor in Biomedical Engineering from the University of California, Irvine, and received a Master of Public Health with an emphasis in Health Education and Promotion from the Keck School of Medicine at the University of Southern California. He has worked in a variety of settings in the public health and healthcare fields since 2005 and is a member of the Men's Health Caucus of the American Public Health Association and currently serves as Treasurer of the Caucus.
Susan G. Komen Foundation
Jeri Francoeur has been active with the Komen Foundation and numerous other breast cancer advocacy organizations, serving as chair of public policy for the Florida Breast Cancer Foundation and the Susan G. Komen Central Florida Affiliate. She is also a past chair of the Medical Quality Assurance Board for the state of Florida Board of Nursing Home Administrators. A breast cancer survivor who also lost a close friend to the disease, she is a passionate advocate for breast cancer research and funding, as well as patient education on treatment options.
James A. Hendrix, PhD
James A. Hendrix is director, global science initiatives, at the Alzheimer's Association. As a member of the Medical and Scientific Relations Division, he provides leadership on specific domestic and international efforts focused on advancing the division's science agenda. A critical element of his role is to manage industry consortia such as the Alzheimer's Association Research Roundtable (AARR); lead the Global Biomarker Standardization Consortium; manage and direct future meeting efforts and output; and assist with the coordination of the $100 million dollar Imaging Dementia-Evidence for Amyloid Scanning (IDEAS) Study on the clinical usefulness of amyloid PET imaging. James received his Ph.D. and a postdoctoral fellowship from Colorado State University. Before joining the Alzheimer's Association, he was a pharmaceutical scientist with a focus on drug discovery for CNS diseases. He spent 18 years working at Sanofi-Aventis and predecessor companies, where he rose to level of senior director, U.S. site head for CNS research. He also spent two years working in the biotech industry with various companies, including Oligomerix, which is focused on tau for the treatment of Alzheimer's disease.
WomenHeart: The National Coalition for Women with Heart Disease
Tricha Shivas has over worked for over 15 years in the non-profit healthcare sector with a focus on patient-advocacy and chronic illness. Tricha received her bachelors in American Studies from Albright College and her Masters of Bioethics from University of Pennsylvania. In her role as WomenHeart’s Development Manager, Tricha works closely on strategic partnerships, corporate relations and outreach and outreach, and grant development to help sustain and grow the patient education, support and advocacy programs WomenHeart offers throughout the nation. Throughout her career, Tricha has spoken at national conferences for bioethics, nursing, healthcare policy, and conducted grand rounds. Tricha’s goal is to increase awareness among women about the risks of heart disease and to ensure the women have access to the best education, treatment, care, and support services.
Colon Cancer Alliance
Dorothy McGrath is a Stage IV colon cancer survivor. When she was initially diagnosed in 2004, on her birthday, she wasn’t offered much hope for survival. Being a researcher at heart, having worked at PBS affiliates for over 26 years, she educated herself on the disease and signed up for a Stage II clinical trial. While researching her disease she joined the Colon Cancer Alliance and has been a mentor, advocate and speaker about this disease in order to raise awareness. Her passion for producing health related programs for her local PBS station escalated. Now that she is an insider on the disease, she has a true understanding of the challenges that patients face. She hopes that her productions are more informative to meet the patients, and their caregiver’s needs.