Patient Group Representatives
Stephen J. Schwartz
The Lymphoma Research Foundation
Stephen Schwartz serves as the Lymphoma Research Foundation (LRF) representative, a survivor of Diffusive large B-cell lymphoma. Stephen’s involvement with LRF was at the onset of his 1998 non-Hodgkin lymphoma diagnosis through the Cure for Lymphoma Foundation (CLF), which later merged with the Lymphoma Research Foundation of America to become the Lymphoma Research Foundation. Stephen serves on LRF’s Regional Leadership Council and was a member of the Public Policy Committee. He is the inaugural recipient (July 2017) of the Marnie Gordon Founder’s Award. Stephen is the Senior Business Development Manager at Advantage DCI, a unit of Advantage Technologies in New York. He joined after spending six years working in energy efficiency at Lime Energy, having served in senior positions including: Program Director, Sales Manager, and Finance Director. Stephen has more than 20 years of international experience as a media sales and marketing, business-to-business professional in the online, print, conference, and trade show mediums. More than half has been in the science (STM) and chemical industries, first at Chemical Week (IHS Markit) then Nature Publishing Group (NPG), a division of Macmillan Publishers Limited, part of Springer Nature. At NPG, Stephen directed all U.S. advertising sales (print, digital and podcast) for Nature, the world’s leading scientific journal, as well as 17 other monthly titles including Nature Biotechnology, Nature Genetics, as well as aiding in the launch of Nature Methods. Stephen lives with his family in New York and is a graduate of the Boston University School of Management, now the Questrom School of Business.
ThyCa: Thyroid Cancer Survivors Association
Theresa Wickerham began volunteering for ThyCa: Thyroid Cancer Survivors’ Association in 2000. Following her original thyroid cancer diagnosis in 1975 she went 25 years without meeting anyone with thyroid cancer. She had a recurrence in 1998. During this more recent treatment experience she found some information about thyroid cancer on the Internet and also virtually met thyroid cancer survivors. This empowerment helped her realize that no one should go through a thyroid cancer diagnosis and journey alone and without the knowledge necessary to make good choices. She decided to get involved and make a difference. She founded the St. Louis Thyroid Cancer Survivors’ Support Group, organized several one-day regional workshops throughout the Midwest, and has taken on more and more involved planning and coordination roles in ThyCa’s International Thyroid Cancer Survivors’ Conferences including hosting the meeting in St. Louis, Missouri, in 2008 and 2015. In 2012 Theresa took the position of Program Coordinator for ThyCa. In this role she furthers education and support programs for all people dealing with a thyroid cancer diagnosis. She lives outside of St. Louis, Missouri, with her husband and enjoys spending time with their children and grandchildren.
Josh A. Mailman
NorCal CarciNET Community
Josh A. Mailman holds a BA in Economics from the University of California at Los Angeles and an MBA in Marketing and Finance from the Anderson School of Management at UCLA. He is a Silicon Valley executive with over 20 years of success in the technology field. Mr. Mailman co–created eFax.com where he served as Vice President of Operations in addition to applying for and receiving several patents for his work on eFax’s technology. During his career Mr. Mailman has held executive level potions at Xerox, NBCi and Everyone.net. Mr. Mailman’s last start-up, ChatterEmail was sold to Palm in 2007. Since his diagnosis in 2006 Mr. Mailman has focused his time and energy in the Non-profit community. He currently serves on the executive board of the Neuroendocrine Tumor Research Foundation (NETRF.org), as president of the Northern California Carcinoid / Neuroendocrine Support Group (www.NorCalCarciNET.org), as Chief Operating Officer of WARMTH, and as a member of the NCI Steering Committee on GI Cancer.
ZERO - The End of Prostate Cancer
Cienna Breen is the Patient Support Programs Coordinator at ZERO – The End of Prostate Cancer, a leading national nonprofit with the mission to end prostate cancer. Founded in 1996, ZERO advances research, improves the lives of men and families, and inspires action. Cienna joined the ZERO team in 2015, and as the Patient Support Programs Coordinator, she helps develop and update patient education materials, coordinates patient education and support programming, and serves as a liaison between ZERO and the prostate cancer community. Cienna holds undergraduate degrees in both international relations and sociology from American University in Washington, D.C.
FORCE: Facing Our Risk Empowered Representative
Rosemary Ciotti is the consumer representative for FORCE, "Facing Our Risk Empowered". A not for profit organization involved in research education and consumer support surrounding genetic risks for Breast and Ovarian cancers such as BRCA 1/2. Rosemary Ciotti is a nurse practitioner and President of Accessible Living, Incorporated of Arlington, Virginia. The company provides expert guidance in Americans with Disabilities Act (ADA) compliance, as well as, working with communities to increase the utility of the built environment through the concepts of Universal Design. Additionally, Accessible Living, Inc. coordinates health care for persons living in the community with spinal cord injuries. Rosemary is a frequent invited participant to conferences both locally and internationally. Rosemary is also Executive Director of “Global Organization of Feminists with Disabilities” (GOFWD) (501 c 3).
Men's Health Network
Ana Fadich serves as Vice President at Men’s Health Network (MHN). Her work involves the implementation of various programs and services related to outreach, promotion, and health education to men, boys, and their families. As a certified health educator, she develops targeted disease education awareness materials and programs on various health topics and leads discussions with participants at health fairs and screenings in an effort to reduce health disparities and educate the consumers. Ana sits on many advisory councils where a voice for the male patient is vital. She has presented at events for the U.S. Food and Drug Administration, the American Public Health Association, and corporate employer sites and conferences. She is a contributing author for Sports-based Health Interventions: Case Studies from Around the World and journal articles such as “The Economic Burden Shouldered By Public and Private Entities as a Consequence of Health Disparities between Men and Women” published in the American Journal of Men’s Health, and also has contributed to white papers such as “A Framework for Advancing the Health of Men and Boys in America: A Position Paper Issued by the Men’s Health Braintrust.” Within APHA’s Men’s Health Caucus, Ana serves as Caucus Chair, increasing the physical presence of the Men’s Health Caucus within APHA and advocating for more men’s health research. She holds a bachelor’s degree in biological sciences from Mount St. Mary’s University in Los Angeles, California, and a master’s of public health degree from the University of Southern California Keck School of Medicine.
James A. Hendrix, PhD
James A. Hendrix is director, global science initiatives, at the Alzheimer's Association. As a member of the Medical and Scientific Relations Division, he provides leadership on specific domestic and international efforts focused on advancing the division's science agenda. A critical element of his role is to manage industry consortia such as the Alzheimer's Association Research Roundtable (AARR); lead the Global Biomarker Standardization Consortium; manage and direct future meeting efforts and output; and assist with the coordination of the $100 million dollar Imaging Dementia-Evidence for Amyloid Scanning (IDEAS) Study on the clinical usefulness of amyloid PET imaging. James received his Ph.D. and a postdoctoral fellowship from Colorado State University. Before joining the Alzheimer's Association, he was a pharmaceutical scientist with a focus on drug discovery for CNS diseases. He spent 18 years working at Sanofi-Aventis and predecessor companies, where he rose to level of senior director, U.S. site head for CNS research. He also spent two years working in the biotech industry with various companies, including Oligomerix, which is focused on tau for the treatment of Alzheimer's disease.
WomenHeart: The National Coalition for Women with Heart Disease
With over 30 years of non-profit management experience, Mary McGowan currently serves as Chief Executive Officer of WomenHeart: The National Coalition for Women with Heart Disease. In this capacity, she serves as the primary representative and spokesperson for this $5 million national organization with more than 35,000 members. Mary joined WomenHeart in September of 2010 as Chief Operating Officer to ensure the organization’s long-term growth and sustainability. She provides leadership and day-to-day oversight of WomenHeart’s main components, including fundraising, resource development, communications, marketing, programs and public policy. She created and implemented WomenHeart's National Hospital Alliance, a partnership with hospitals nationwide that seeks to ensure that women heart disease patients in every community have access to information, education and patient support services. Prior to joining WomenHeart, Mary served as Executive Director of the Allergy & Asthma Network Mothers of Asthmatics (AANMA), and she held various positions with the American Academy of Pediatrics (AAP) during her service of 18 years. Following the events of 9/11, she was project director on multiple emergency preparedness grants focusing on the needs of children. Mary earned a Masters Degree in Human Resources Development from George Washington University and a B.A. from Trinity University.
Colon Cancer Alliance
Dorothy McGrath is a Stage IV colon cancer survivor. When she was initially diagnosed in 2004, on her birthday, she wasn’t offered much hope for survival. Being a researcher at heart, having worked at PBS affiliates for over 26 years, she educated herself on the disease and signed up for a Stage II clinical trial. While researching her disease she joined the Colon Cancer Alliance and has been a mentor, advocate and speaker about this disease in order to raise awareness. Her passion for producing health related programs for her local PBS station escalated. Now that she is an insider on the disease, she has a true understanding of the challenges that patients face. She hopes that her productions are more informative to meet the patients, and their caregiver’s needs.
Lung Cancer Alliance
Maureen Rigney is Director of Support Initiatives at Lung Cancer Alliance (LCA), a Washington, D.C.-based national nonprofit organization whose mission is to save lives and advance research by empowering those living with and at risk for lung cancer. Maureen works with LCA to identify evolving community needs, develop strategies and collaborations, and lead initiatives designed to address those needs. She has a special interest in lung cancer stigma and health disparities. Maureen represents LCA on a variety of boards and committees, including the Global Lung Cancer Coalition. She is a member of the Association of Oncology Social Workers and serves on their advocacy committee. Prior to joining LCA, Maureen worked in a variety of behavioral health settings in three states and the District of Columbia. Maureen received her master's degree from Jane Addams College of Social Work at the University of Illinois at Chicago and her bachelor's of science in psychology from South Dakota State University.