Patient Group Representatives
Stephen J. Schwartz
The Lymphoma Research Foundation
Stephen Schwartz serves as the Lymphoma Research Foundation (LRF) representative, a survivor of Diffusive large B-cell lymphoma. Stephen’s involvement with LRF was at the onset of his 1998 non-Hodgkin lymphoma diagnosis through the Cure for Lymphoma Foundation (CLF), which later merged with the Lymphoma Research Foundation of America to become the Lymphoma Research Foundation. Stephen serves on LRF’s Regional Leadership Council and was a member of the Public Policy Committee. He is the inaugural recipient (July 2017) of the Marnie Gordon Founder’s Award. Stephen spent six years working in energy efficiency at Lime Energy, having served in senior positions including Program and Finance Director. Stephen has more than 20 years of international experience as a media sales and marketing, business-to-business professional in digital, print, conference, and trade shows. More than half has been in the science (STM) and chemical industries, first at Chemical Week (IHS Markit) then Nature Publishing Group (NPG), a division of Macmillan Publishers Limited, part of Springer Nature. At NPG, Stephen directed all U.S. advertising sales (print, digital and podcast) for Nature, the world’s leading scientific journal, as well as 17 other monthly titles including Nature Biotechnology, Nature Genetics, as well as aiding in the launch of Nature Methods. Stephen lives with his family in New York and is a graduate of the Boston University Questrom School of Business.
Colon Cancer Alliance
Dorothy McGrath is a Stage IV colon cancer survivor. When she was initially diagnosed in 2004, on her birthday, she wasn’t offered much hope for survival. Being a researcher at heart, having worked at PBS affiliates for over 26 years, she educated herself on the disease and signed up for a Stage II clinical trial. While researching her disease she joined the Colon Cancer Alliance and has been a mentor, advocate and speaker about this disease in order to raise awareness. Her passion for producing health related programs for her local PBS station escalated. Now that she is an insider on the disease, she has a true understanding of the challenges that patients face. She hopes that her productions are more informative to meet the patients, and their caregiver’s needs.
Josh A. Mailman, MBA
NorCal CarciNET Community
Josh A. Mailman holds a BA in Economics from the University of California at Los Angeles and an MBA in Marketing and Finance from the Anderson School of Management at UCLA. He is a Silicon Valley executive with over 20 years of success in the technology field. Mr. Mailman co–created eFax.com where he served as Vice President of Operations in addition to applying for and receiving several patents for his work on eFax’s technology. During his career Mr. Mailman has held executive level potions at Xerox, NBCi and Everyone.net. Mr. Mailman’s last start-up, ChatterEmail was sold to Palm in 2007. Since his diagnosis in 2006 Mr. Mailman has focused his time and energy in the Non-profit community. He currently serves on the executive board of the Neuroendocrine Tumor Research Foundation (NETRF.org), as president of the Northern California Carcinoid/Neuroendocrine Support Group (www.NorCalCarciNET.org), as Chief Operating Officer of WARMTH, and as a member of the NCI Steering Committee on GI Cancer.
ThyCa: Thyroid Cancer Survivors' Association
Theresa Wickerham began volunteering for ThyCa: Thyroid Cancer Survivors’ Association in 2000. Following her original thyroid cancer diagnosis in 1975 she went 25 years without meeting anyone with thyroid cancer. She had a recurrence in 1998. During this more recent treatment experience she found some information about thyroid cancer on the Internet and also virtually met thyroid cancer survivors. This empowerment helped her realize that no one should go through a thyroid cancer diagnosis and journey alone and without the knowledge necessary to make good choices. She decided to get involved and make a difference. She founded the St. Louis Thyroid Cancer Survivors’ Support Group, organized several one-day regional workshops throughout the Midwest, and has taken on more and more involved planning and coordination roles in ThyCa’s International Thyroid Cancer Survivors’ Conferences including hosting the meeting in St. Louis, Missouri, in 2008 and 2015. In 2012 Theresa took the position of Program Coordinator for ThyCa. In this role she furthers education and support programs for all people dealing with a thyroid cancer diagnosis. She lives outside of St. Louis, Missouri, with her husband and enjoys spending time with their children and grandchildren.
ZERO - The End of Prostate Cancer
Matt Marks is the Government Affairs & Advocacy Manager at ZERO - The End of Prostate Cancer. In this role, he leads ZERO's fight for increased prostate cancer research funding, access to early detection and screening, and other public policies that help men and families battle prostate cancer. The grandson of a prostate cancer survivor, Matt leverages his policy and advocacy skill set from his time on Capitol Hill with his passion for working on behalf of the men and families battling the disease. A native of Chicago, he holds a bachelor’s degree from Michigan State University.
FORCE: Facing Our Risk of Cancer Empowered
Rosemary Ciotti is the consumer representative for FORCE, "Facing Our Risk of Cancer Empowered," a not-for-profit organization involved in research education and consumer support surrounding genetic risks for Breast and Ovarian cancers such as BRCA 1/2. Rosemary Ciotti is a nurse practitioner and President of Accessible Living, Incorporated of Arlington, Virginia. The company provides expert guidance in Americans with Disabilities Act (ADA) compliance, as well as, working with communities to increase the utility of the built environment through the concepts of Universal Design. Additionally, Accessible Living, Inc. coordinates health care for persons living in the community with spinal cord injuries. Rosemary is a frequent invited participant to conferences both locally and internationally. Rosemary is also Executive Director of “Global Organization of Feminists with Disabilities” (GOFWD) (501 c 3).
Men's Health Network
Ramon works in External Relations and Strategic Partnerships, and Minority Health Initiatives for Men's Health Network. In addition to developing partnerships and health initiatives, Ramon represents MHN's activities in the states and on various city and state government health panels and committees. His previous positions were as Director of Programs for MHN and health promotion at the U.S. Department of Health and Human Services in Washington, D.C. Ramon Paolo Llamas graduated with a B.S. in Biological Sciences with a minor in Biomedical Engineering from the University of California, Irvine, and received a Master of Public Health with an emphasis in Health Education and Promotion from the Keck School of Medicine at the University of Southern California. He has worked in a variety of settings in the public health and healthcare fields since 2005 and is a member of the Men's Health Caucus of the American Public Health Association and currently serves as Treasurer of the Caucus.
Susan G. Komen Foundation
Jeri Francoeur has been active with the Komen Foundation and numerous other breast cancer advocacy organizations, serving as chair of public policy for the Florida Breast Cancer Foundation and the Susan G. Komen Central Florida Affiliate. She is also a past chair of the Medical Quality Assurance Board for the state of Florida Board of Nursing Home Administrators. A breast cancer survivor who also lost a close friend to the disease, she is a passionate advocate for breast cancer research and funding, as well as patient education on treatment options.
Christopher Weber, PhD
Dr. Weber, director of Global Science Initiatives, oversees efforts to advance the scientific agenda of the Alzheimer’s Association. With over 20 years of clinical research experience, Dr. Weber is responsible for communicating the global research landscape of Alzheimer’s and dementia, including the breadth and reach of the Association’s research programs, and the critical need for increased research funding from the public and private sectors.
Dr. Weber directs Association initiatives that convene leaders from across the field to develop, expand and increase the success rate of Alzheimer’s diagnostic tools and drugs to treat and prevent the disease. He manages the Alzheimer’s Association Research Roundtable, a platform that enables international scientific, industry and government leaders to overcome shared obstacles in Alzheimer’s science and drug development. He also oversees the Global Biomarker Standardization Consortium (GBSC), an initiative that unites key researchers and clinicians with industry, regulatory and government leaders to achieve consensus on the best ways to standardize and validate biomarker tests for use in clinical practices worldwide. Dr. Weber received his doctorate in clinical psychology from the Illinois Institute of Technology.
Amy Friedrich-Karnik, MPP
WomenHeart: The National Coalition for Women with Heart Disease
Amy Friedrich-Karnik is the Vice President of Advocacy and Communications at WomenHeart where she oversees the organization’s policy, advocacy, communications and marketing efforts to advance support and access to care for women living with and at risk for heart disease. Prior to joining WomenHeart, she was the Senior Federal Policy Advisor at the Center for Reproductive Rights, where she helped lead the Center’s federal policy work. She focused on developing and implementing strategies to ensure protection for reproductive rights and access to reproductive healthcare in the U.S, regularly engaged with Congress and coalition allies, and oversaw the Act for Women campaign. Previously, Amy was an independent consultant, providing guidance to non-profit clients on policy and advocacy, development strategies, and project management on women’s health and caregiving issues. Before going out on her own, Amy worked at Family Caregiver Alliance and for U.S. Representative Jan Schakowsky. Amy received a Master of Public Policy degree from UCLA. She lives in Northern Virginia with her husband and two children.
Go2 Foundation for Lung Cancer
Anita McGlothlin is the Director of Economics and Regulatory Affairs at the Go2 Foundation for Lung Cancer (Go2), a Washington, D.C.-based national nonprofit organization whose mission is to save lives and advance research by empowering those living with and at risk for lung cancer. Anita works closely with the Patient and Outreach Services, Health Policy, and Science and Research programs to advance the Go2's mission through the development and implementation of priority science and regulatory policies. Having led low dose CT lung cancer screening national coverage efforts for radiology in her prior role, and with over twenty years of economics and health policy expertise, Anita has a special interest in reducing patient access barriers and increasing the lung cancer screening rates. In addition to her career in screening and policy, Anita was appointed to the National Lung Cancer Roundtable as the Vice Chair of the Policy Action Task Group, which is a partnership of public, private and voluntary organizations that play a key role in reducing the incidence of and mortality from lung cancer. Over 156,000 Americans will die annually from lung cancer and like so many other families impacted, Anita’s advocacy work holds a personal story.
Us TOO International
Terri has been on the staff of Us TOO International since 2005. In her current position as Program Director, she is the point person for more than 200 prostate cancer support group leaders across the country and abroad, and leads the expansion of the support group network. Through the professional relationships she has grown, she serves as the liaison for Us TOO connecting to the prostate cancer community and amplifies the voice of patients and caregivers. In addition, Terri leads strategic program initiatives that provide prostate cancer educational resources, support services and personal connections through monthly support group leader training conference calls, support group leader webpage resource updates, training webinars, and support group leader roundtable discussions. She manages multiple patient and caregiver support services including “A Forum for Her” bi-weekly conference calls for wives and female partners of men with prostate cancer, and “The Gay Men’s Forum” monthly conference calls for gay men with prostate cancer and their husbands or partners. Her impact extends to identifying and confirming prestigious prostate cancer physicians and medical experts to participate in the Us TOO Pathways educational event and webcast series. For the past 14 years, Terri has also had a leadership role in creating and implementing the annual SEA Blue Chicago Prostate Cancer Walk & Run, which draws more than 1,000 participants to raise awareness for prostate cancer and raise funds to support the work of Us TOO.
Terri lives in North Carolina her husband Marty. Terri & Marty have six boys between the ages of 34 and 24, and one grandchild.